I’ve learned a lot from you and your experiences from your book and your posts. When I read your book it gave me light bulb moments with regards to my own daughter (16, recent ASC diagnosis with anxiety and depressive disorder, undiagnosed PDA). I’m very thankful I came across you Steph.
I find social media overwhelming and often too short to have much impact beyond awareness. Perhaps groups (even virtual ones) to gather people to a live discussion? That might just be my preference, though. I like talking to people and shaping the discussion to benefit the person I am talking to.
I do monthly webinars about specific issues related to nonspeaking autistics and their families. I share my experience and expertise while also being able to answer questions based on individual situations. Something like that might be valuable to the PDA community - I know that I would love that. I do not necessarily want a master class, but meetings based on specific issues and discussion with other parents would be phenomenal. Book reviews might also be good. There are several books that keep getting recommended, but people struggle to read them and it helps to digest them with others.
I have just read your book & my husband too. Even though I’ve known for 5 years my daughters are PDA, the battle to get it officially diagnosed continues. I found your book so supportive and validated so many emotions and experiences I have gone through.
I have so many of the same questions myself - I want to get off social media, trying to be here on Substack more, and wondering which way I should go with my writing. I think you’ve helped a lot of families and can help many more - and it’s ok to regroup on what YOU want to do ☺️
I’ve learned a lot from you and your experiences from your book and your posts. When I read your book it gave me light bulb moments with regards to my own daughter (16, recent ASC diagnosis with anxiety and depressive disorder, undiagnosed PDA). I’m very thankful I came across you Steph.
Amanda (social media phobe)
ah well thank you for your kind words, it's lovely to know my words have helped a bit!
I find social media overwhelming and often too short to have much impact beyond awareness. Perhaps groups (even virtual ones) to gather people to a live discussion? That might just be my preference, though. I like talking to people and shaping the discussion to benefit the person I am talking to.
I love this idea and I agree, talking helps in many ways! I might have to think a bit more about how I do that...
I do monthly webinars about specific issues related to nonspeaking autistics and their families. I share my experience and expertise while also being able to answer questions based on individual situations. Something like that might be valuable to the PDA community - I know that I would love that. I do not necessarily want a master class, but meetings based on specific issues and discussion with other parents would be phenomenal. Book reviews might also be good. There are several books that keep getting recommended, but people struggle to read them and it helps to digest them with others.
Yes! Love this - and sharing more about books has been in my thoughts for a long while. I just need to formulate a plan!!
Yes! I would second this
I have just read your book & my husband too. Even though I’ve known for 5 years my daughters are PDA, the battle to get it officially diagnosed continues. I found your book so supportive and validated so many emotions and experiences I have gone through.
Well thank you for reading, I'm glad to have helped in some small way!
I have so many of the same questions myself - I want to get off social media, trying to be here on Substack more, and wondering which way I should go with my writing. I think you’ve helped a lot of families and can help many more - and it’s ok to regroup on what YOU want to do ☺️
Thank you - a good reminder I guess, that there is no rush to decide and maybe the answer will come to me over the course of the next few months!